When this happens to you, when something devastating happens that
interrupts the flow of your life and you're just not sure what is going
on, you have to adjust. You have to deal with it. I don't think there is
enough help out there. I know from experience...I didn't find that there
was a lot of help.
You have to work with the whole person. Whatever the problem, it doesn't
just impact that part of your body. There is an emotional and
psychological effect. And it impacts on the family, too. I was able to get
someone to talk me through, but I said my son also needs some help. But
there was nothing there for him. I really want to work with families with
disabilities.
There were ten of us...a big family...a close family. My sister and I were
talking this morning about getting more centrally located because we are
all kind of spread all over the place. Since we are old enough, we want to
get back together, not be so far apart.
I have a twin brother. When we were twelve, my second oldest brother took
my brother and me out all night. We went everywhere. We went to the Empire
State Building, the United Nations Building, we went to the New York Zoo
and saw the blue whale, we rode on the subway. We went to some all-night
movie. I remember saying to him, "Is Mom going to be mad at us that we're
out so late?" He said, "Oh, don't worry about it. You're with us! You're
with me!"
When you lose something after you become an adult, and you're really
established in what you want to do, the emotional cycle that you go
through is really hard.
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